update on bleeding issues....

just talked to the head of hemotology.  They are so good and knowledgable here on Von Willibrands disease and low Fibrinogen ( his clotting issues). They are going to check his levels right now prior to surg and are very prepared if bleeding turns out to be a problem.  I feel real good about things....he Will go through it just fine I am sure.  He Will be leaving this room shortly for surg prep.  It's now noon.

72.  Doctors with amazing knowledge that are calm and confident!

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Plans for Surgery #3

I talked to a team of 5 drs this morning. Their plan is that they hope to start the skin graft today with the plastc drs.  They Will be waiting for a few weeks on a bone graft.  If the bone shows signs of filling in the 1/2 inch gap on its own he might not need the bone graft. If it does not fill in then that surg Will be a few weeks down the road.    We believe in miricles....have seen so many in our lives so I know if Heavenly Father wants it to heal on its own it well.  If not, I totally trust these drs and if a surg is needed for that all Will still be good.

blessings/TM

67. morphine and Benadryll! He was in pain and was given these meds at 9:40 and by 9:55 he was asleep. 

68. Heavenly Father calmed the weather and cleared the roads.  Alan is on his way and I need him!

69. A friend from high school showed up with delicious and warm choc chip cookies.  They are delicious! (its not a blessing that because they taste so good I might gain 5 pounds by eating them all myself!)

70.  This hospital is the coolest!  Someone just brought a little puppy by to visit us.  Bryson was asleep so he missed it.  They said they Will be back.

71.  Prayer! I love that any where I am at I can pray...even kneeling on the floor up against a hospital bed.  I love my Heavenly Father. he knows who I am and hears and answers my prayers!

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we had a good night

The night went well.  Slept till 4:30 them woke up for half hour them back to sleep till 8.  bryson is still sleeping.  I hope he sleeps quite a bit this morning because he can't eat or drink because surg is at 1:00.  Alan said it is sunny at home and roads are open.  He is trying to be here by 1.

Blessings/TM

65. Not only did he smile, but a little later while texting he laughed.

66. At 4:30 this morning they had him stand so they could change his sheets.  I was able to wash him down with a wash cloth.  That would have been his first bath (if you could call it that) since Friday.

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63. Yeah. They found a way to get the pump up and running.

64. Going to bed 11:15 pm for Much needed rest!

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The Pump...

The pump that run out of batteries is important because it keeps the blood from pulling in the wound site.  And I guess blood is a breeding ground for bacteria.  Still is not working.  The hospital gets it from an outside sourse and they called them and for some reason they can not get another one from them till after lunch tommorow.  They are trying to hunt one down somewhere here in the hospital.  The Dr. (surgeon) is on the hunt now.  Hope they get one soon.....frustrating!

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worthy of 1 final post before bed!

62.  I have been so sad not to see a smile....but I was out in the hall and walked in and Bryson was looking at his phone shaking his head saying "Grub Grub Grub"  bryson shared the text..comments about where to get the graft from and why!  And then it happened a SMILE! Thank you Grub this Mom needed to see that tonight before bed! I'm thankful that you are friends and for your wise cracks you send his way.  Keep it coming he needs them and so do i!

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last post till tommorow (i think)

blessings/TM cont....

43.  Friend and nurse who made extra special efforts in getting medical records I needed!

44. The room Bryson is in has a great bed for me and it's even comfortable.

45. I got 6 hours of sleep last night and hoping for atleast that tonight.

46. Doctors and nurses that not only have knowledge but have people skills and show so much kindness.

47.  Phones so I can tell my kids and husband I love them before bedtime!

48. Prayer.  Not only that I can pray for my own child but also for the children I hear cry down the hall.

49. My amazing and very tough boy! He has not cried once.  I even told him I would still think he is tough if he cries.  He comforts me when I cry.

50.  Texts from friends I know I have already shared that but its the only thing right now that has brought any emotion of happiness.

51. Bryson's kindness he shows me! Like being concerned that I need rest or telling me mom.....go eat! I am so thankful he's my son! I'm a proud mom!

52. I'm thankful that I know someday he Will smile again and I can't wait!

53. A kind call to Bryson from Elder Dave LaSueur an Area Seventy for the Church of Jesus Christ of Latter Day Saints. Of which we are thankful to be a member of!

54.  A gift bag brought to use this evening with some very yummy things....Bryson loved the popcorn and MnM's which he ate and watched Harry Potter.

55. A nurse that is able to read sign language so when I walk out in the hall every 60 seconds blinking my hands.....she knows his alarm is going off again.  We are on our 3rd IV machine.  We also are getting.a.new pump that is draining his wound...battery died and YES another alarm went off. 

56.   Modern technology

57.  friend gave me the idea to update everyone on a blog.  This has been good for me emotionally.

58. A husband that I can't wait to see tommorow!

59. A blessing is all my blessings! I feel very blessed tonight I am so thankful to everyone and especially to my Savior Jesus.Christ whom I love and whom can truly understand and help Bryson the most!

60.   that it is after 8 which means I might get some sleep soon.

61.  Brysons blessing....one more foot massage before bed!

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Surgrey #2

Well after the first surg we were under the impression that the next would be on Monday.  But Sat night at 1130 plastic surg came in.  They are very worried about infection so they wanted to go back in Sunday morning to clean it out again, cut away dead tissue and muscle and make sure all is ok.  The surg took 1 hour and he woke up a lot quicker this time.  They did take out dead tissue and even worked on some damaged nerves.  he has a little nerve damage that is causing finger numbness they thinly it will eventually come back.  It only a little numb mostly the thumb. But as of right now there is no infection in there.  He is receiving 2 diff types of antibiotics often during the day.  Next surgery will ne Monday at 1. They are not quite sure what will happen then....maybe just a clean out, maybe starting the graft that it will take to cover up the softball size open wound, or maybe a bone graft from his hip to fill in about 1/2 inch of bone that is missing in one of his arm bones. Our prayers are that they will know what to do.  A team of orthapedic drs will be looking at his case in the morn prior to surg.

Blessings/TM

30. I have to say...our greatest blessing is that we still have Bryson around to have surgeries! We are so thankful it was not any worse!

31.  texts bryson has received from friends.  He does not talk much...but when he wakes up from his drug induced naps...the first thing he asks for is his phone.  Those texts have meant the world to him! He has such great friends and we are very thankful for all of you!

32. My sister who brought food and Sat with me during today's surg....Alan is stuck in Flag from the storm...were praying that weather is calmed and he can get here tommorow.

33.  A daughter who packed a great bag of clothes and friends whom brought them to me.

34.  A shower for me In Brysons hospital room

35.  A bro n law whom brought food and gave me a sweet blessing of comfort.

36.  Family that brought Panda Express to a starved boy and his mom.

37. Life...our lives are a blessing!

38.conference talk

39.  Phone calls from family/friends!

40.  Our other 3 kids at home...their wellingness to help out, go with the flow, not complain and pray! Love you and miss you!

41.  That they were able to change out his iv during this last surg to a better one in a better place.  He can now finally use his right hand.  We had lots of iv problems last night.

42. Friends who bring homemade spagetti to the same starved boy.

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more blessings/tender mercies

17.  Alan made it back home to be with our other children (on very little sleep)

18.  My brother who stayed with me till the helicopter left and whom gave me advice to not get sick in flight (he use to fly helicopters).

19.  A sister/bro who meet is on Phx as we landed

20.  Angels who cleaned a dirty house

21. More angels who brought foo

22. And more that have called, prayed and offered help.

23.  Temples..Brysons name is on 3 prayer rolls

24.  Fasting and prayer from so many

25. So many family/friends whom just take over and take care of kids, etc...

27. A friend whom sends a text to remind me to look for blessings from my Heavenly Father (even though thinking of those blessings has kept me in tears most of the day)

28.  Bryson would say...foot massages from mom are a great blessing ( I'm just worried that he will start to expect them daily after he is well too):)

29.  Because this is a children's hospital...they have several stations on tv with great clean movies...allday/night long!

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surgery #1.

He finally went into surgery around 2 am.  It was suppose to take 1.5 hours but ended up taking 4 hours.  The apparatus he has on his arm will be there for 6 to 8 weeks.  He had a very difficult time waking up from surg.  Took 3 hours to wake up...we assured him that he was fine because it takes a lot to wake him at home in the mornings and that's without drugs and little sleep

:)

Blessings/tender mercies-

13.  The surgeon whom did the surgery belonged to the Church of Jesus Christ of Latter Day Saints.  We ended up knowing some of the same people.  He was very caring.  It was a comfort to know that the man working on our child understood the power of prayer....and we knew he would use it!

14.  Modern medicine!

15.  Pain killers to help keep pain somewhat under control.

16.  Benadryll to help stop his itching from so many narcotics

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The Helicopter ride....

So thankful for the decision. To air vac us to phx.  The ride went smooth and fast! When we got to the we in phx a crew of 15 plus Dr and nurses went to work.  I have never seen so many people work on someone! They were great!

Blessings/tender mercies-

10.  Mom didn't get sick on helicopter

11. Dad drove to phx safely on little sleep.

12. Phx Dr's that are very knowledgable about Bryson's bleeding conditions (he has 2 issues that keep him from clotting properly)

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pictures

More blessings/tender mercies

9.  Jayden and Jared's jokes as we drove to flag that helped Bryson keep his mind off his level 12 pain!

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pictures

More blessings/tender mercies

9.  Jayden and  Jareds jokes on the way to Flag that helped Bryson keep his mind off of his level 12 paina

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Bryson's accident

On Saturday early evening, evening Bryson and Jayden turned a corner on our chuck wagon (glorified golf cart that goes max 15 mph) they hit gravel...it tipped and the roll bar landed on Brysons left arm.  jayden lifted it off his arm and ran for help.  Brysons phone had fallen out of his pocket so he called me and told me to hurry that he had a broken arm and that he was near the Poudrier's home...his arm was for sure broken..compound fracture -not a prity site!  my hope is to use this blog to keep family and friends updated on his progress, to keep track of the many blessing and tender mercies we have recieved and to help pass the time here in the hospital.

Blessings/tender mercies at the sight of accident-

1. Jayden was with him not hurt but there to lift it off his arm and run for help.

2. The power of God is on the earth.  Jared Turley (Jayden ran and got his dad) and Kelly Rogers (who just happened to be riding by on horses) gave him a blessing.

3. Several friends came to the scene to help and give comfort

4.  Bryson remained calm and even comforted his tearful mom!

5.  Didn't see 1 police officer as we hurried to Flag :)

6. Dad was able to meet us on the road (he was on his way home from meetings)

7.  Tons of family/friend support at the hospital

8.  The decision to air vac to phx children's hospital.

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